
Hey there, Blog, I forgot I created you. Since your origins I have neglected you and for that I am sorry. I got sort of … busy. When you were conceived it was in a simpler, more care free part of my life, now things are so stressful and complicated. You understand … don't you?
It's only right that I at least offer an explanation for my betrayal and neglect. Here goes:
It was summer and the cake pops were abounding. In preparation for my lovely sister-in-law's Tahoe wedding I was cooking dozens and dozens of lovely little cake pops. But that's not all that was in the oven. I was laboring in the very hot kitchen when waves of nausea and dizziness began to overtake me. Hot dang, I was pregnant. I had wanted another baby for years now and my hubby wasn't ready (another Loooong story altogether) but now it was baby time and I never was more excited to be nauseous.
But I digress, this explanation isn't about cake or nausea. It's about Jack. He changed my life. He changed all of our lives, as a matter of fact. But he has given us many scares. That's where the wedding comes into play.
Imagine a beautiful summer day in Tahoe. The bride was stunning, the weather was perfect, all of the people arrived and were sitting on picnic blankets: it was a sweet outdoor wedding. I was a bridesmaid wearing a pretty white summer dress and sporting the signs of a very serious baby bump. But ten minutes before the wedding, I began to bleed. Without getting into gory details, it looked and felt like I was going to miscarry. But there was no time to do anything so I told my husband, who was officiating, and we prayed. Both of us agreed to suck it up and put on a happy face. But as soon as we were able, after the wedding we snuck away and started the long drive home.
The pastor of our church and his lovely wife came when they heard what was happening. They prayed for me and pressed me not to throw in the towel but to see a doctor about what was happening. I had no insurance at the time so that was not very possible. The church payed for our visit.
The following day while my man stayed home with the boys, I drove to my ob doc. I explained what was happening and he looked very grim. He wanted to do an ultrasound. To my great surprise, the doc found a little tiny heart beat coming from a small life within me. I was placed on bed rest (not really an easy task with a four and five year old running about).
Three weeks shy of his due date baby Jack was born with a mess of white hair and the sweetest eyes. He was so small, my other babies were mammoths, but I assumed it was due to being three weeks early. I was wrong. Four weeks later we discovered that his heart was severely malformed and he was rushed by helicopter to Stanford hospital for an open heart surgery. Once we recovered from the shock of all that another and more serious heart disease was discovered and in he went for his second heart surgery. This time they told me that the surgery was really only a temporary fix and that he was not long for the world. The people of our church and all of our friends and families rallied together in serious and constant prayer.
His disease was very aggressive and within weeks he was hospitalized again. There was nothing to be done, they said, so they sent us home and put Jack on hospice. Here is some morphine, they said, to keep him comfortable, and by the way will you sign this "do not resuscitate form"? No thank you.
Meanwhile, Jack's amazing cardiologist had been scouring the country looking for a solution. That's how we found Boston Children's. One leer jet flight later, Jack was under the care of a team of specialists who deal with his rare and often fatal disease. This is the country's best hospital and that became immediately confirmed. Jack was given balloon dilations of his veins and put on a chemo trial. After several weeks we were sent home to California.
We soon discovered that Boston Children's really was the best and only hospital for Jack; that coupled with the fact that they wanted to oversee all of his procedures - which happen quite often- made us realize that we either need to have my husband and kids move in with my mother-in-law so I can move to Boston with Jack and afford the extreme price of living there. Or we would have to sell our belongings and move together to Boston. Rather than dividing our family we look a leap of faith. We had to move fast, as Jack's heart couldn't wait long for another procedure. Within five days we sold three cars and roughly half of our belongings and made an 11 day journey across the greatest nation on God's green earth. That's another series of awesome stories altogether.
We are now living in a stunning apartment we can't afford in Salem, Massachusetts, not far from Boston. Our lives have been yanked from the roots and replanted in the strangest place I have ever been. More on that, another time.
So you see, my little blog? You see why you have been left alone so long? It's been a wild ride and it keeps getting more and more interesting. You understand ... Friends?